Quote:
Originally Posted by karsten
I was diagnosed mild to moderate chronic sensory distal axonal symmetric polyneuropathy with small fiber modalities. That long worded description was the exact writing in my doctor's report.
I don't think my symptoms are getting worse. Honestly though it is sometimes hard to tell with a sudden flare that crops up from no where. My flares effect hands and feet ( sometimes memory fog as well). Numbness in soles of feet, random cold feeling in feet and tingling in hands along with an occasional stab of pain now and then. Also, some odd sensations in the scalp which are now pretty rare but re-occur minimally with the flares.
Typically a few days later the flare subsides. Tingling in hands go away completely at times. The soles of my feet always have some numbness , but the max and mins between are significant in comparison. Sometimes I can barely feel numbness under my feet at all. It is so weird!
This condition is frustrating and scary. I just keep fighting through it hoping that I'm slowly improving or at least staying the same.
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Thank you, Karstan, GlennJ and Susanne. I found the comorbid information really interesting, Glenn, since I have RA (in remission), deg. disc disease, as well as sensimotor polyneuropathy. Makes you wonder, doesn't it?
Susanne, I'm not sure about my sister's PN since she's usually pretty busy and we don't have much time to talk. Next time I email her, though, I'll ask what kind she has.
Karstan, sounds like you're at the beginning of PN. I've had it about seven years, and it started off with a bang for me. I couldn't walk any longer than five to ten minutes, without being in excruciating pain. That's what sent me to numerous neurologists trying to figure out what was wrong.
One more thing, I went off the statins since every time I tried to take them, I would have serious heat intolerance issues. I have heat intolerance anyway, but I had really bad issues while I was on the statins.
I really appreciate you all taking the time to weigh in on this for me!