Quote:
Originally Posted by SallyC
Do you guys, doing so well on Tysabri, feel cured as if your are
sorta cured. Do you walk, run, talk and think normally now?
Splain Lucy..  |
Hi Sal
I don't feel cured per se but I definitely don't think of MS every day. It will be six years this summer since my first symptoms and diagnosis and I haven't had a relapse (knock on wood, knock on wood, knock on wood!!).
Technically I'm clinically isolated syndrome (CSI) but the doc diagnosed MS off the bat based on the MRI and spinal tap.
Yes I still walk, run, think normally except when it gets hot outside. Then I have some cog fog and I slow down energy wise and my vision isn't as sharp. But once I cool down all is good. I feel incredibly lucky and I think going aggressive with the Tysabri a year after diagnosis was the right choice for me. I had a higher tolerance for risk.
I now only get it every other month. If I had kept on the every month path I think I would be at #62 or so. But #39 and I'm still doing well.
(knock on wood yet again!)