Quote:
Originally Posted by sandy56
My opthomologist wants me to have a Tensilon test. I have diplopia and started to have ptosis when my Neuro started me on a beta blocker for migraine prevention. The migraines just started a few months ago along with numbness and tingling in my hands and feet. I was found to have low b12 and my neuro thinks my symptoms are all due to low b12 (300's). I have been on b12 injections and SL tablets for 2weeks and many symptoms have improved but not the ocular symptoms. At the end of the day my vision is so bad I can barely drive home. I have paper tape in my car to tape open my eyelids if needed. My neuro has not called me back after many messages and I think he feels MG is ruled out since I am seroneg. I live in central Florida. Does anyone know how Shand's:m) in Gainesville is good at MG diagnosis. I am getting frustrated with my current Dr.  |
I had tried everything to make Shands in Gainesville work for me, but it kept failing. After close to a year of nightmare problems, and with constant support from my insurance provider, I have gone to St. Petersburg. This drive is two hours from my home, in Ocala, but more than worth the drive.