Junior Member
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Join Date: Apr 2013
Posts: 20
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Junior Member
Join Date: Apr 2013
Posts: 20
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We usually plan everything out and pick and choose what nights to go out. Usually we only go out when she can stay in bed the entire next day without any problems. Every restaurant has become take out for us. We usually tip the hostess and explain that we're not feeling well but really enjoy their food and want to take it home with us. not having to sit out usually really helps her. we pretty much live on the couch. if we're doing a lot of walking, i'll usually carry her cane for her until she thinks she might need it. We definitely modify a lot of what we do. I've found that the cane helps a lot. If we go out to a bar or a club usually the staff will help bring over a chair or in theaters people will offer their seats. her RSD is mostly in her upper extremities but her hips get exhausted from her posture and something as simple as a $10 cvs cane can change the whole night.
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