Good morning Corbybird.
I am so sorry you're having to deal with this. I, too, have Axonal Sensory Motor Polyneuropathy. However, it is new to me, though I've had PN for about seven years. I also have some bladder issues, but in my case, I'm pretty sure it's because I had four children.
This is only my take: I think you should talk to a friend about this, just to get the burden off your chest. And, having three irreverent and fun-loving boys myself, I would hold off telling them. My boys would always bring it up at the most inopportune (for me, anyway!) times. Instead of bringing others down, they might just bring your spirits up.
I know nothing about self-catherization, though. God bless you.
Quote:
Originally Posted by Corbybird
I have Axonal Sensorymotor Neuropathy and bladder problems. Yesterday I received training in ISC (intermittent self cath) after going through many other options.
I was okay with this when the specialist told me last week as she'd spoken of it as a possibility since I first saw her a year ago. I knew I'd tried everything else and was prepared. Until I came out of the training. It had gone well and it is not really any big deal but afterwards I, quite suddenly, went into a strange, low and flat, I guess depressed, mood. I'm still feeling that way today. I know it will lift because I am always a cheerful person but I want it to go now!
I haven't spoken to anyone since as I live alone. I know there are people I could talk to about it, and I want to but I guess I don't want to share my sad side and pull others down ..
I don't know whether to tell my adult sons about this. It's something they just wouldn't want to have to imagine lol. They would definitely make me feel better with their warm irreverence and constant joking but I'm not sure whether to go there.
I don't know whether this is part of the PN. I think it is and my urologist says she thinks so but can't say for certain.
Does anybody out there have to do this too? The nurse yesterday said I'll end up with a bag! Better be wrong about that!
Thanks for reading this. I probably just need to get it out.
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