Just wanted to welcome you to the NeuroTalk Support Groups and to suggest that you may also want to repost your question on the General Health Conditions & Rare Disorders Forum here.

Link below...
http://neurotalk.psychcentral.com/forum2.html

edited to add: Actually I just did a quick search in the forums and there are several older posts.

Search results for Essential Thrombocytosis

Just a tip as well... If you put Essential Thrombocytosis in the title of your post (you have Mam) it might come to the attention of someone else who may have the same condition.

good luck.