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Old 04-25-2013, 10:57 PM
PaulaJ's Avatar
PaulaJ PaulaJ is offline
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Join Date: Apr 2013
Location: Newark, DE
Posts: 1
10 yr Member
PaulaJ PaulaJ is offline
New Member
PaulaJ's Avatar
 
Join Date: Apr 2013
Location: Newark, DE
Posts: 1
10 yr Member
Default Don't give up

I totally feel your pain. I have been disabled since I was 24 and I am now 54. I just went through the most terrifying experience of my life. I realized I was having substantial blackouts. Periods of confusion got so bad that I no longer recognized my own name. My verbal output was totally scrambled although in my head I knew the answser I wanted to give it was not what would come out my mouth.

I have CFS, ADD, hypothyroidism, dysthymic disorder, chronic major depressive disorder, general anxiety disorder and of course, B12 deficiency and pernicious anemia which apparently as it has not been treated iin 10 years because of my insurance company denying treatment this is what caused my recent experience and possibly everything else.

At the ER they did a CT scan that proved no dementia or early onset Alzheimers but it took weeks in the hospital and weeks of out patient and advocating for myself to get my B12 levels tested. They are barely over 100. Now that I have an answer I finally have hope but I am here to find out what appropriate treatment should be to insure that I will get what I need to get well.

For me, faith has been what has gotten me thru. During that time that I did not even know my own name and thought it was 1916 I was writing on my daily forms give me B12 shots. Only God could have provided that information when I was in such a condition. It was not done and when I was released I continued to do my own research and got tested. Have faith. Get tested. Be persistent. You do not deserve to be feeling that way at your age, nor that way at mine for that matter.

I pray that you will find the answers and get the help that you need. Do not let the depression eat you alive and do not take no for an answer. Seek doctors that will listen to you and work with you. No one knows your own body like you do. I had to see several doctors over several years to get the tests I needed as I do not present normally. I also do not react normally to many medications. I just found this board and I hope to find some answers here. But, please do not give up. God has a purpose for all of us and you can get well. It just may take a lot of work and a lot of prayer and a lot of persistence and good doctoring.


Quote:
Originally Posted by featherbullet View Post
After 2.5 years of living hell, at 29 years of age .. After maxing out on narcotics and taking as much lyrica as I can function on, all the right supplements ,
Rest, time, tests , Losing relationships, friendships,putting immense strain on my family , being denied disability , and being terribly broke ...
I am out of hope , faith, and a will to carry on
I got the diagnosis of peripheral neuropathy.. But with no known cause.
In the morning, my hands are numb.. All of my muscles hurt and burn when I stretch. Burning from neck to feet .. That is relentless. I have tried all the lotions and potions. I can't just sit at home with ice packs all over me forever.
I'm not even 30.. Single , no profession because I had to drop out of school..
There is no hope. I have up on prayer ages ago.
Nobody wants to be around a whiny , negative person who is never happy and always in 24/7 pain.
I'm done. I'm just done. No desire to torture myself any longer.


Has anyone else ever dealt with crippling depression because of this horrendous disease?
Everyone I see on here is older .. No offence .. But my best years were still to come.


I had to get this out. Thanks for listening.
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