I was reading about the US support groups in the other thread and I would really love to know if there are any groups in the UK. As another poster said, this site is great, but it would be lovely to meet others who have this and just chat generally about life...

I've asked a couple of docs who have said they will find out for me and then, predictably, never do. I think persevering myself might get better results!

Any info gratefully received

Bram.