Sandy,
Everyone here has given you wonderful advice. I hope your visit to Mayo goes well.

I was seen there several years ago after 6+ years of symptoms. I had a positive experience and fortunately was given options for treatment. I am seronegative, EMG negative, though tensilon test was positive. Treatment recommendations were based off of this positive test and clinical symptoms. I feel that the recommendations were as aggressive as they would have been for someone who was seropositive (i.e., prednisone, IVIG, long-term immunosuppressant).

Had I not gone to Mayo I believe that I'd still be searching for answers today. I hope that your experience there is as positive as mine. Feel free to PM me if you have any specific questions.

Cate