I think the interaction of sleep apnea and MG can be very dangerous. They used to push CPAP machines on people that didn't receive much benefit from them. I've heard the insurance companies are trying to clamp down on CPAP over-prescription to save cost. It's harder to get an insurance company to approve the expense at this time. I'm even having trouble getting approval for certain supplies that are 100% needed every 6 to 12 months. It just means you have to waste a bit of your time on the phone getting approvals.

The CPAP machines take a while to get used to, and have other drawbacks (for instance my wife is not thrilled I need to use this gadget each night). You must be well fitted for the headgear so it fits your head and works well given how you sleep. If the headgear doesn't fit well, the therapy is useless. If you get a CPAP machine and you think you don't have the right headgear fit, have them try a different style or size until it works for you.

For me, the CPAP system works very well. Waking up tired and aching is not OK and I don't do that anymore. It used to be a huge problem affecting family, work and every other aspect of my life.

Trying to sleep with a closed airway can't be good for anyone with MG induced breathing issues. I've seen some data showing CPAP machines can actually save the life of someone who enters a MG breathing crisis.

If you need a CPAP system, get one, and don't let them talk you out of it. Then, give it some time to learn how to sleep comfortably with it. If you are like me, it will make a big difference.