I'm new to the group and I'm scared. Scared because I'm just not getting answers.

I've had three events, October 2011, May 2012, November 2012 with these issues and a few new ones added especially during the last two episodes. Each episode lasted about 48hours and I slowly improved between each one. It takes about 6-8 weeks to recover.

-Muscle weakness
-extreme stiffness
-tremors
-vibrations in head and body-my body is always vibrating
-eyes balls hurt and feel like they are always jumping
When my eyes are close, rolling black blocks to the point of making me dizzy -Eyes have been checked and nothing.
-severe headaches
-shortness of breath
-squeezing under by rib cage-tested for stomach issues, gall bladder-normal
-arms, legs pins and needles
-extreme bouts of heat rushes what make me tingle all over and pins and needles-the only thing that helps is having a popsicle
-stomach issues and pain
-stabbing, ribbing pain in chest and stomach
-trouble hearing at times
-flashes of white light in my eyes.
-blurred vision
-lost bladder- peed on the floor while brushing me teeth and didn't even feel it
-lost bowels
-trouble processing what a person says
-moving strips of numbness that move all over the body
-Buzzing tingles that shoot up my spine when I bend my neck to my chin - this is a newer symtom
-jaw pain
-dizziness
-trouble swallowing - this has never gone away and gets worse with each event
-feeling like I'm walking on a tilt.

I've been tested for Lyme, Lupus and a dozen other things and everything is negative.

"White matter evaluation suggests no convincing evidenct to suggest a demyelinating process. There is a focal T2 and FLAIR hyperintensity white matter seen in the rightfrontal lobe which is non specific . Incidental note made of a right posterior frontoparietal developmental venous anomaly."

The scariest thing happened in November. I was lying down and went to get up and my body was paraylised from the neck down for about 15 seconds.


I have had a brain and spine MRI which states...
"White matter evaluation suggests no convincing evidenct to suggest a demyelinating process. There is a focal T2 and FLAIR hyperintensity white matter seen in the rightfrontal lobe which is non specific . Incidental note made of a right posterior frontoparietal developmental venous anomaly."

I've seen two specialist which basically say "They can't say I have MS and the can't say I don't. "

I am on gabapentin and baclofen which help a bit with the symtoms.

I am lost and terrified at this point.

Kim