Hi,

Are you saying you are taking 60 mg of mestinon every 8 hours? If so, that is likely not enough. I think most dose every 3-4 hours. I suggest you run that by your doctor.

MG is just tough. I think it's very important to try everything you can to get improvements, but sometimes meds and procedures just don't work very well, no matter what. You sound fairly unstable right now, so if you can work closely with your doctor in the next weeks, perhaps you can get some relief. Does your doctor email with his/her patients?

Keep fighting! You never know when a treatment will work or when your body will decide to improve spontaneously. Always be open to new ideas!