Hi, I was taking mestinon every 3-4 hours. The doctors told me that was too much so they supposenly gave me 8 hour pills. But I didn't think they had 8 hour pyridostigmine. I'm on 60 Mg prednisone daily. A iron pill because being in the hospital a month can do that to you.hospital/woo much blood taken Aniema. Plasma did help though cuz mine is vary Bulbar/swallowing/talking. I can eat and swallow though my speech is on and off still. Swallowing was weak when I had my xray/swallowing test but its going down right. Again like we all know some days are better than others. Falling is vary Scary because I have stairs and then another stair into my home. always that last step into the home. But its like ahhh I haven't done that sińce I wasn't on mestinon. Before I was diagnosed. I have been under a lot of stress so that could be part of my problem.
Thanks
Lisa
Quote:
Originally Posted by 4-eyes
Hi,
Are you saying you are taking 60 mg of mestinon every 8 hours? If so, that is likely not enough. I think most dose every 3-4 hours. I suggest you run that by your doctor.
MG is just tough. I think it's very important to try everything you can to get improvements, but sometimes meds and procedures just don't work very well, no matter what. You sound fairly unstable right now, so if you can work closely with your doctor in the next weeks, perhaps you can get some relief. Does your doctor email with his/her patients?
Keep fighting! You never know when a treatment will work or when your body will decide to improve spontaneously. Always be open to new ideas!
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