Yup. I was going to say "this doesn't have to mean it's getting worse".

I found my symptoms changing frequently, which makes it so hard to get a grip on "what works". On top of that, you have days with break through pains that even ignore medication or overall improvement. Or a new symptom that doesn't seem to make sense.

At first I thought I was going slightly loopy, but since then I more or less learned not to panic - as that stress WILL make it worse for me.

For me it's a bit like a very bad symphony orchestra with different solo's and sometimes previously unknown (to me) instruments.

In my case, what didn't make sense was that it was both my big toes & my little toes that sometimes hurt a lot, while the middle toes seemed unaffected. It surely challenges the logical mind...