Quote:
Originally Posted by villier
Sorry to hear you are feeling the way you are, I know exactly how you feel I have been catheterising for aout two years now I have small fiber sensory gaglionopathy with a few autonomic problems going on one being the bladder, if you need someone to talk to that understands feel free to PM me I am a good listener and I know what you are going through xx
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Hi Villier,
What does PM mean? Thanks for your response.
I've just been on 2 weeks hols (I work in a school) & work started back today. Everyone was asking each other about their hols. What was I to say? Seven of the 9 working days I had were spent doing medical stuff and I learnt how to self-cath? Lol. Yeah, I wasn't in a laughing mood and my foot pain was so bad I barely made it home before bursting into tears. And that was a worry because the kids aren't back at school yet. I just sat on my backside all day!
Just now I went to take my evening meds & realised I hadn't taken any this morning! Problem explained. I hope. Though every working day is a huge struggle.
How long did it take you to come to terms with the catheterising? I think my neuropathy has autonomic aspects as well, though that's not diagnosed. I have dry eyes, dry mouth, I don't sweat, have heat/cold problems and the bladder problems. Some dizziness. So tired now...