You can get your GP to do the referral. But you will probably have to do a lot of phone calls and faxing of results on your own. That is what they told me for John Hopkins. John Hopkins said there is a review process by a board and a usual 3 month wait list. But they did say that if symptoms worsened, to keep them updated and they may be able to bump the appointment up with a cancellation. Good luck and let us know how you make out.

If I were you I would pursue it. I definitely think it is worth the effort to get the best experienced doctors who treat more aggressively.

kathie