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Old 05-02-2013, 04:42 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default I may have something to help

Quote:
Originally Posted by Peony View Post
Made it Up: I was diagnosed 6 years ago, but had what I now believe were PD symptoms long before that. And yes, I do see a good MDS neurologist. As I indicated in my initial post, the Sinemet actually gave me weak legs & cramping, also toe curling, etc., a few years ago, which basically went away when I decreased dosage. So it's not an "off" problem, just the opposite. Now I need the Sinemet more than I did then for slowness, sleep, etc., and the weak legs, etc., and it's getting harder I guess to find a balance between relief & side effects. So what else is new, right?


Peony-
Oddly enough, I starteda long postpone experiment yesterday and my first reaction was along the lines of "Damn! This may actually help in a big way!"

Everyone knows about vitamin B12, right? Everyone has tried it, right? I mean, it is so obvious. What kind of White Rat would charge right past a cheap vitamin that he had heard of all his life? Well, I'll tell you. A deeply chagrinned and somewhat embarrassed one. But, looking over the archives here, I find that I am not alone. There is a little discussion of it but nothing like has been put into "sexier" things like mucuna or such.

So, let's change that.....

Wikipedia-
"Vitamin B12, vitamin B12 or vitamin B-12, also called cobalamin, is a water-soluble vitamin with a key role in the normal functioning of the brain and nervous system, and for the formation of blood. It is one of the eight B vitamins. It is normally involved in the metabolism of every cell of the human body, especially affecting DNA synthesis and regulation, but also fatty acid synthesis and energy production. Neither fungi, plants, nor animals are capable of producing vitamin B12. Only bacteria and archaea have the enzymes required for its synthesis, although many foods are a natural source of B12 because of bacterial symbiosis. The vitamin is the largest and most structurally complicated vitamin and can be produced industrially only through bacterial fermentation-synthesis."

I am going to break this up to avoid massive text loss, but stay tuned...
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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