Thread: Ivig
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Old 05-02-2013, 10:33 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
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I agree with all the others - I go to an infusion center with recliners etc.. I bring my own lunch as well.

As far as side effects go - I echo the others -drink lots of water! Females witha past history of migraine headaches are more likely to get the bad headaches from IVIG.. For me rate was extremely important! For the longest time I couldn't go about 70, so it took most of the day to get infused 50 grams.. now the side effects have lessened and I go at 100 (max is usuallly 210 for people who can tolerate it).

I feel a little run down, and get hot and a little achy.. but that's about it now.. then 4 days later its BOOM I feel SOOO much better!! I also have 2 kiddos 3 and under, it's not easy, but I will never forget when I could hold a crayon again and hold my kids again (as It took months of me worsening before I crashed and they gave me IVIG).. it's a miracle drug.. and yes, expensive. Good luck!!!
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Mastas (05-03-2013)