Those symptoms are severe, and I think it's nuts to wait three months before pursuing a diagnosis (although it's true that some people test negative at first and positive later). You need a referral to a neuromuscular specialist right away.
Some of your symptoms sound to me like classic MG, and some don't. But MG is tricky--most of us are atypical in some way (if that even makes sense!).
A lot of seronegative people here got diagnosed by a neuro-ophthalmololgist. Those guys seem to be excellent at interpreting eye symptoms.
Meanwhile, if your symptoms suddenly get worse, or if you have trouble breathing, or if you can't swallow, those are medical emergencies. Go to the ER of the biggest hospital you have access to.
Abby
Quote:
Originally Posted by feelyupnorth
My doc proposed a wait & see... retest in 3 months.
My symptoms started following a string of viral & bacterial illnesses this fall... bronchitis x3, influenza, stomach bug x2 & recurrent vaginosis/yeast infection following uterine ablation. It seems that I have not recovered since resolving these issues in February.
Current symptoms that have emerged & are now persistent include:
extreme fatigue
weakness in arms & neck
vestibular disorder
severe tinnitis
double vision... mainly at night
difficulty focusing eyes & maintaining focus
drooping R eyelid... worsening with stress/fatigue
short of breath
muscles "jump" & tire
difficulty keyboarding - mostly left hand weakness & control
intermittent swallowing difficulty
restless legs
periodic limb movement disorder
I have moved from full-time to half-time which helps but am exhausted by Friday. I continue to be very limited when it comes to social/family engagements... missing a lot of "life."
|