Sorry to hear what you have been going through!!! My question is that if they thought it was a reaction to the prednisone (the first bounce back of weakness), and you are on 80mg now.. could it still be the prednisone?? From what I know prednisone itself can cause weakness, especially in the begnining.. Have they talked about starting the prednisone at a low dose (aka starting at 5mg or 10mg and slowly going up to a higher dose)... when people are hit hard at first with prednisone the weakness can worsen.. Good luck and keep us updated!