Just a very important FYI ......our guidelines and terms of use strictly prohibit research for publication etc to be conducted on posts here, or to solicit members for research.

It is a fine line and so a member interested in researching information to help themselves or others is ok...but providing information to an "official" researcher or for a physician to use for publication would be a violation of our terms of use/ guidelines as well as a possible breach of copyright here....

I mention this as the discussion has gone from one where it was a member expressing personal interest based on something their physician may have mentioned to now taking a bit more of a formal research turn, which is not allowed. This is not to inhibit new research but to maintain the mission statement of these forums, where members should feel safe to discuss their health issues without concern that their info is going to be used without their permission etc etc. The ramifications of formal research go beyond the scope of what I can post here...and so I do caution members not to cross that line please.