Thanks MrsD,

The video opened my eyes to the number of people that are experiencing some of what I have been going thru for the past 4 years or so. I have felt so alone in this with little sympathy from the local medical community. Most days I just feel like I am going crazy and get mad at myself, cause I can't stop the seizure like twitching I am having and I can't focus and concentrate on much else. I am afraid of having to go back on disability because I can no longer focus and concentrate at the level required of my job, and that is increasing my anxiety as well.

No one has ordered any of the tests you recommended, they just saw my B12 levels rise, medicated me and sent me home. I will see if my primary Care Physician will order the tests you recommended. I assume they can also test for low magnesium at the same time? My blood sugars are always just a touch on the high side, but not diabetic levels.

I have been discussing seeing another neurologist as well, and after seeing the video, may try and schedule an appointment with Shand's Hospital in Gainesville as that is relatively close to where I live.

At one point I was taking the following medications:

Htz 25 mg once per day
Trichor 145 mg once per day
Lipitor 20 mg once per day
Advair 250/50 twice daily - COPD, discovered 12 years after quitting smoking)
cynocobalamin 1cc weekly
Spriva once per day - COPD, discovered 12 years after quitting smoking)
Cerefolin Once Daily - Probably not a good idea based on the video
Requip XL 8 Mg before bed: Initial diagnosis was RLS before finding B-12 def
Gabapentin: 600 Mg 3 times a day
And another bad one: Nexium

I am down to:

Htz 25 mg once per day
Advair 250/50 twice daily
Spriva once per day
Gabpentin 400 Mg 3 times a day. (Just restarted this after over a year without it)
cynocobalamin 1cc weekly
Over the counter 400 mg Folic Acid. (Probably not a good idea after seeing the Video)

Thanks for having this forum to help people who are having an issue that is not well recognized by medical community.


Regards,

Chuck