[QUOTE=SFNgirl;980769]I find this conversation fascinating. Just recently my primary doctor made an odd comment in middle of discussion of my SFN, about the pineal cyst (in brain) that I have. I have never been told of this, and have had a CT scan of brain twice over last 3 years with this same doctor. She said this time it's roughly the same size as a few years ago, so nothing to worry about. But isn't it odd that nobody ever bothered to even mention it? I do have headaches, ringing in my ears and had some trigeminal nerve issues, no idea if a cyst like this can cause any of that, I did look it up and usually they are asymptomatic and nothing to worry about. Anyway, just wanted to share my agreement with your stories, and hope you get some good focus and answers from your doctor when he/she returns from vacation.[/

I am upset about it because of seemingly lack of careful evaluations. It was like an after thought to inform me about the findings. I would have never known had I not asked!!!

It is really important that the patients or his/her family representatives be on top of the treatment.