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Old 05-07-2013, 05:43 AM
Mastas Mastas is offline
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Join Date: Apr 2013
Location: Orlando, FL
Posts: 42
10 yr Member
Mastas Mastas is offline
Junior Member
 
Join Date: Apr 2013
Location: Orlando, FL
Posts: 42
10 yr Member
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you have gotten some great advice. Yes, MG is better than MS. I also had difficulty getting diagnosed. Then, the treatment plan is TRIAL and ERROR. I started on prednisone and had awful side effects. I am currently in the process of getting off prednisone and on to Cellcept. Four more weeks and I should be totally off the steroids. I also take mestinon for symptoms and I am having my first ivig treatment this week. My first MG test was a false negative and five months later, it was positive. I had severe double vision, so they kept testing for a ton of different things. Basically, i felt MG was the best of all of the options that cause double vision. The worst part is that everyone responds differently to the meds. So, I am guessing it will take up to a year to get me regulated and know what the best treatment plan. But, my dr. assured me that I will not end up in a wheelchair for life with MG. Keep your spirits up and strive for finding a great dr.
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"Thanks for this!" says:
sandy56 (05-07-2013)