It's been almost a year now since the very rapid onset of these symptoms, and there's been no improvement. In fact, symptoms are as bad as they've ever been. Since my last post I've done 4 rounds of IV steriod infusions and tried various medications. I have underlying back problems but can't do even gentle PT for those issues because it makes the small fiber neuropathy go completely haywire, in a way that is completely and amazingly out of proportion to the gentle stretching being attempted by me and/or the physical therapist. It's really unfathomable. I saw a highly acclaimed neurologist in the midwest who told me 4 months ago that in about a year I'd know where I'll be symptom-wise for the rest of my life. With 8 months to go until that timeline expires, I have very intense body-wide SFN that shows no signs of any change. This is very difficult because I can't do normal things. It has basically ruined everything. Here's a very small example: I sat outside for a few minutes on Sunday, sitting in the direct sunlight with jeans and a shirt on. After a few minutes I had to go inside because the heat from the sun was causing the symptoms in my thighs and arms to worsen. How strange and crazy is that? And it was just an early spring late afternoon, not even particularly warm or overly sunny. As far as the docs are concerned, they're basically out of ideas for me. One is still trying to help me, but she doesn't really know what to suggest at this point. So what do you do when your doctors move on? Are you just on your own with this condition?