Quote:
Originally Posted by ginnie
I am so sorry you feel bad. I really hope you will at least try this kind of doc. I mentioned before. I don't think she would ever give up on me, no matter what my pain or problem was. She is a physiatrist. The deal with pain first, then treat the whole person at a cellular level. If your current doctors have given up, there is always hope. It took me many tries before I found a complete team that actually talks with each other. each specialist, gives the records and notes to the other physician. I sure hope you can find a team that will help you so you can enjoy life a bit more. I will keep you in my thoughts and prayers. ginnie  |
Thanks Ginnie. One of the docs I've been seeing, in addition to neurologists, is a pain management expert/physiatrist at a major center in the DC area. He has no other ideas for me, so I guess I'll have to find someone else. I wonder if there are others on NeuroTalk who, for lack of a better way to put it, "have what I have." This kind of non-length dependent SFN is apparently extremely rare, and I haven't really found anyone with whom to compare notes. Certainly not in my everyday life. In fact, I might be one of a handful of people at most with this condition in a major metropolitan area of 3 million plus people. Crazy...