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Old 05-07-2013, 07:53 PM
sandy56 sandy56 is offline
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Join Date: Apr 2013
Location: central florida
Posts: 125
10 yr Member
sandy56 sandy56 is offline
Member
 
Join Date: Apr 2013
Location: central florida
Posts: 125
10 yr Member
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Quote:
Originally Posted by cait24 View Post
Most people do not tolerate pregnisone very well. I am on 40 mg a day and I think I am the exception. It has made my symptoms more stable. I have not gained a pound of water. My mood is better, I laugh and sing now which I do not think I have done in 2 years. I have more energy but I do not have any more strength. It may have been so beneficial to me because I have more than 1 autoimmune disease, so it improved several of them. I have MG, Hashimotos hypothyroiditis, an intestinal component of one of my auto immune disease and perhaps hemolytic or pernicious anemia (high RDW).

So hope for the best and ask your doctor if pregnisone is a short term or long term treatment for you. I would be more concerned if he expects you to stay on this drug for more than 6 months.

good luck
kathie
I go back to follow up with my neuromuscular doc in 2 weeks. I plan to ask him what the long term plan is. He should have my antibody tests back by then
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