That is so well put. It is one of my biggest challenges. I seriously considered circulating a description of SFN around my office, so people would see that's it is real and the symptoms, though crazy, are real. everyone says I look great, no external indication, except for the fact that I can barely wear shoes and almost always have wool socks on because i find that the air actually hurts my ankles.

I also did the steroid infusions with no success, so it seems we may have tried all the same things. Warm weather has been the one bright spot for me. I went to Mexico w my family for spring break, and I felt much better, not sure if there is any medical reason for it.