Quote:
Originally Posted by sandy56
I have a new diagnosis of MG (2 days) I am on mestinon and prednisone.I have a long planned trip to Italy in 3weeks. I have a follow up appointment in 2 weeks and if things are going well my doc says I can go. He says my disease is mild and that I have to live my life. I just ordered a medic alert bracelet and have a wallet card. I will be there with a native Italian who can translate. I am not sure what else to bring. Any help would be appreciated.
Thanks
Sandy 
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Sandy, just like MG appeared one day and presented itself to you, when you least expected it, so can't and won't your symptoms. You, me, your doctors don't know how fast your MG will progress, or when you could go into crisis. The one thing that you, I, am most of the people on this site, and similar sites do know is how difficult it is to find a Neurologist who specializes in Myasthenia Gravis; therefore, is flying 3,000 miles or more going to insure that should you need additional support and care while you are abroad going to deliver you the type of medical support and care that we with MG require when it was so difficult to find a good one to start with? I think not. I think you are not facing the realities of this disease, and or how it can and does progress. I believe that you should sincerely reconsider this trip, as you are playing a dangerous game. While it might be said that life is for the living, and that we have to live while we are young, when we are confronted with the harsh realities of MG we have to respect that importance of life and live to fight the battle another day, as there will be plenty. I, stupidly, flew to CA shortly after being diagnosed, and it was one of the most careless things I have ever done in my life; I hope you will reconsider.