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Old 05-08-2013, 07:32 AM
Spectrum Spectrum is offline
Junior Member
 
Join Date: Nov 2012
Posts: 17
10 yr Member
Spectrum Spectrum is offline
Junior Member
 
Join Date: Nov 2012
Posts: 17
10 yr Member
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Quote:
Originally Posted by SFNgirl View Post
That is so well put. It is one of my biggest challenges. I seriously considered circulating a description of SFN around my office, so people would see that's it is real and the symptoms, though crazy, are real. everyone says I look great, no external indication, except for the fact that I can barely wear shoes and almost always have wool socks on because i find that the air actually hurts my ankles.

I also did the steroid infusions with no success, so it seems we may have tried all the same things. Warm weather has been the one bright spot for me. I went to Mexico w my family for spring break, and I felt much better, not sure if there is any medical reason for it.
Can I send you a PM so we can discuss more? (If I can figure out how to do that on here :-)). Glad you were able to get away and have a little fun.
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