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Old 05-08-2013, 09:37 AM
Mokey Mokey is offline
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Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
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Hi Difayes mom,

I am feeling better this month. It really does come and go. I wonder if those bad periods are times of consolidation which precede a gain! Or do we just feel better compared to how awful we felt!

When the neuro-opth. Tested for nystagmus last week, she saw none. But the vestibular therapist and another doctor did another test where they 'throw' you back with your head to the side and then observe your eye movements. I test positive when they do that. So it may be possible you have some BPPV which, like me, is not always active but brings on bad dizzyness and nausea when a sudden move or something happens.

I hope you feel better soon. I can see how upsetting it is to get a bump on the head and then worry what is going on. I don't know how people cope with having more than one concussion! Hang in there. It gets better slowly.

My neuro-opth. Told me this week that it can take 3-5 years of gradual healing. I was happy to hear that because I don't want this state to be as good as it gets!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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