Originally Posted by Spectrum

I do see your post above. It sounds like you're in the same boat as us. It's truly unbelievable. It's very hard to have hope when you see no improvment and your doctors can't give you even a short or medium term prognosis. Mine were confident early on that all of this would dissipate, because of the way it came on so quickly. They thought it was probably the unfortunate result of some toxic reaction to platelet rich plasma and prolotherapy injections I was receiving for some back issues, and that it would likely resolve. Now it's about a year later, and symptoms haven't resolved and are probably worse. And as you referenced, it's a very cruel thing because you're going down two parallel tracks that no one else is aware of unless you tell them. On one track, your life has basically been ruined, and that's not an exaggeration. On the other track, you look relatively normal and have to try to act "normal" and continue on with business as usual while you're in agony every minute. That dichotomy is enough to drive you nuts, and I think at some point those two lines intersect and you have to leave your job, etc.