Thank you all for your help and advice I am so grateful!
Kathie- I am in the UK and our system is a bit more restrictive I think? I did email my neuro a couple of weeks ago when things were bad but he didn't address the breathing at all and just scheduled an appointment for a week later!! I took a few days off work which thankfully helped so the breathing had settled by then - not that he asked me about it anyway, he just focused on my facial and leg weaknesses!
Annie and Bny806 - thank you both for you help - you both seem to be having a rough time too, bless you! I will take your advice and not take any risks (and leave the hair styling - this with my droopy face and duck/limp walk has all the makings of Quasimodo....I best avoid Disneyland! Haha)
On a serious note - thank you all, it is a huge comfort to know I am not alone.....as unfair and hard as it is for us all!
Eve.x