Originally Posted by heb1212

Hi, again... You mentioned that you were receiving "platelet rich plasma". Did they run blood tests for all viruses that could possibly have been introduced via the blood therapy? Hep C, B and parvo virus b19? The virus I had shortly before my neuropathy started was parvo virus b19... though it is a very unusual manifestation of the virus. Usually, it's more extreme joint and muscle pain, though I have that, too. Yes, nerve, muscle and joint pain... I'm quite a mess. I mention it because it is a virus that can harbor in the bone marrow and does have something to do with blood platelets (though I'm not sure exactly what). I don't want to send you on a wild goose chase, but it is a thought. For a year my neuropathy was labeled "idiopathic" but I relentlessly brought up the parvo virus b19 and asked for retesting a year and a half later because I just had such a hard time accepting that the virus and the sudden onset of neuropathy couldn't be related. I also had severe gastrointestinal problems and sudden significant weight loss, so for a while a paraneoplastic syndrome was being considered and tested for.
I am taking gabapentin and have recently added 10 mg. nortriptyline... hate taking it all. It makes me feel like a zombie and really only takes the edge off the pain. But, otherwise, I'd be incapacitated and I need to participate in life still! Though, I've gone from a very positive, happy person... not without struggles, but certainly NOTHING like this... to just managing to "get through" the basic responsibilities that I have.
I'll be sure to check this site a little more often to get your updates and to share.