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Originally Posted by SFNgirl
Oh, and one more thing. Heb1212, I'm intrigued by the weight loss comment you made. I too have lost a lot of weight. And my doc just did a paraneoplastic panel which has been sent off to a specialty lab. He also ordered CT scans looking for malignancies, which were normal thankfully. He is also looking for rare autoimmune, which has been his theory all along, but steroid infusions did not help. I have had the postural light headedness for as long as I can remember, and he thinks that could have been a red flag, though others say could also be simply that im tall with low blood pressure...I haven't seen others mention weight loss though, and I'm not sure if it is the stress or the meds (that all warn of weight gain) or maybe some combo.
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I've lost weight too, because I changed my diet as a result of not being able to exercise, or really to do any physical activity aside from walking without inflaming the SFN. But maybe that's something to look at too. My current doc thinks mine is rare autoimmune too, and that it somehow morphed into that and took on a life of its own after a toxic reaction to the platelet rich plasma injections and prolotherapy I was getting for some back problems. But the IV infusions haven't really helped me either.