Quote:
Originally Posted by Mastas
Hi....I am "new too". I was diagnosed a few months ago. Dr. Put me on prednisone and my side effects were really bad. At 40, I went two days without sleeping. He lowered me to 30 but I still felt awful. I am now in the process of getting off prednisone and on cellcept. The process will take six weeks. This is week two and I am typing in the middle of the night bec I can't sleep  . I guess everyone is different, but I can not tolerate it. I have a friend with RA and it works great for her. I have just decided it is going to be a trial and error thing..ln time, they will figure out what meds work best. I am in central FL too (Orlando). I really like my dr. He is also sending me to St Pete to get some more info from a dr there that seems to treat more MG patients. |
After I wrote this...i went back and read some of your other posts. Dr. Weiss is the dr. I am seeing in St. Pete. My dr in Orlando thinks he is the best in FL. He was going to send me to Mayo or Shands and he said he checked with some people and he decided to send me to Weiss.