Thanks Susanne! I do hope others chime in as well. Yes my symptoms are primarily left-sided, although I do have decreased sensation on the right leg as well. Just not pain. At this point is definitely is idiopathic PN.

I have wondered about CMT--no one is my family has been diagnosed. But my father, who is 74 now, has had bilateral carpal tunnel-like symptoms with both hands/forearms. He had an EMG to confirm. He has had hammertoes on both feet for a long time. He denies any neurological changes to his lower extremities. I had read that CMT can vary widely from person to person. I've got 2 daughters--really don't want that to be an answer!

I am scared, frustrated, feeling fed up!