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Old 05-09-2013, 04:50 PM
alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
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If your able I would try to get an earlier appt. and really let your doctor know that your pain isnt being controlled. I know your worries as I went through it too. I had the lower body SCS they didnt want to do the upper body worring they would make things worse. My SCS helped my pain for 3 months then it was like my pain went around it and my incisions also burned. I had to tell my doctor I needed my meds in higher doses and I explained the pain and everything I was going through so he did up it but even that didnt keep me out of the er I was with that doctor for 2 years until I met a doctor closer to my house who was head of pallitive care at the hospital and he saw the meds I was on and switched some things around, added some, got rid of others, it was hard finding the right amount and the right mix but he did succeed and I went from being on crutches and not whereing shoes, to now walking and having more of a life. I know the worries as I have seen doctors who think your just asking for more but hopfully yours isnt like that. SCS arent 100% going to work for everyone and for some end up not working at all, like mine. We all respond to different treatments.
The burning you have on the incsions is it just around them or is it pretty wide spread. When my burns I use lidoderm patches which numbs the area and that helps so much. I now carry patches everywhere I go just incase I bump myself or get injured in anyway so they quickly numb the area to try and keep me out of the ERs.
How long have you had the SCS's have they tried re-adjusting the settings to try a different sensation to see if it make a difference? I am so sorry your having so much pain and I hope you can get some relief soon. Are you able to check your blood pressure and pulse that was another way I was able to prove I wasnt just wanting the drugs, they saw how tachi I was with high BP and pulse that they knew I was really in lots of pain.

Sam
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