Quote:
Originally Posted by Mastas
Hi....I am "new too". I was diagnosed a few months ago. Dr. Put me on prednisone and my side effects were really bad. At 40, I went two days without sleeping. He lowered me to 30 but I still felt awful. I am now in the process of getting off prednisone and on cellcept. The process will take six weeks. This is week two and I am typing in the middle of the night bec I can't sleep  . I guess everyone is different, but I can not tolerate it. I have a friend with RA and it works great for her. I have just decided it is going to be a trial and error thing..ln time, they will figure out what meds work best. I am in central FL too (Orlando). I really like my dr. He is also sending me to St Pete to get some more info from a dr there that seems to treat more MG patients.
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Thanks Mastas
I live in Brooksville and just got diagnosed by Dr FRANKLIN (associate of Dr Wiess) in St Pete. So far I am happy with him. I just started having insomnia last night. I plan to call the office nurse tomorrow and ask for advice. I am also having day sweats and dizziness. I found that my mestinon did not last more than few hours today. Good luck with your treatment