Hi, SFN Friends... I have another question for y'all. I'm sitting here this morning with a vibrating sensation through my whole body. I have this pretty much all the time, even in my torso area. Do any of you get this? Also, any other odd paresthesias, crawling, tingling, in addition to the burning? Cold temps (air conditioning in the summer) provoke my nerve symptoms something awful. I can't even sit and watch my kids outdoor sports events because it's just too painful.
Thanks for your responses. Believe it or not, I went to bed the other night feeling just a BIT better knowing that I had connected with people who could sympathize in a way even the most compassionate of my friends and family can't... there's just no way to truly convey how difficult this is. After nearly two years of this, I have resigned myself to taking more medication. Spectrum, my doctors, too, felt it would "idiopathically" go away (ha, ha) as it had come on so fast... so, I thought every day thereafter was a day toward healing. The emotional rollercoaster of looking for improvement, never experiencing it... in fact, getting worse... has taken it's toll on me.
Proverbs 3:5-6 is my hope when all else seems hopeless.
"Trust in the Lord God with all your heart. Lean not on your own understanding. In all your ways, acknowledge Him, and He will make your path straight.
Do not be wise in your own eyes. Fear the Lord; shun evil. This WILL bring health to your body and nourishment to your bones.
Blessings...
Quote:
Originally Posted by Spectrum
I've lost weight too, because I changed my diet as a result of not being able to exercise, or really to do any physical activity aside from walking without inflaming the SFN. But maybe that's something to look at too. My current doc thinks mine is rare autoimmune too, and that it somehow morphed into that and took on a life of its own after a toxic reaction to the platelet rich plasma injections and prolotherapy I was getting for some back problems. But the IV infusions haven't really helped me either.
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