Quote:
Originally Posted by Debbie D
So I talked to a friend the other day...she said her girlfriend, who's had MS for over 20 years, has stopped progressing. She has no new relapses.
Of course I googled this and didn't find any instances where progression stops-well a few cases but extremely rare. This information gave my DIL hope for me, but I personally feel maybe she is now SPMS...
Any opinions or info out there?
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Hi Debbie,
I saw my neuro yesterday for my yearly follow-up. I have transitioned to Secondary Progressive
w/out Progression. I still have MS and I still have residual symptoms. I have not had a relapse in 11 years and there has not been any clinical evidence of progression, for several years.
From what I was told there are 10 percent of those with MS (using or not using a DMD) who do not progress. My neuro is putting me in that 10 percent. He said it is highly
unlikely I will progress.
I have a very high respect for what this disease is capable of doing so for now I am very happy and thankful but I will cautiously "wait and see."