Ok so my orthopedic sent me for another 3 phase bone scan. he was looking for anything els possibly wrong and see if he can spoth the spread of RSD.
I get a call from the drs office with the results. The woman says to me"we got the results of the bone scan and it shows "NO" RSD/CRPS. " and she reacts as If this news is supposed to make me happy. Like ohhh this test says you dont have RSD so your cured. is every body in the "REAL" non RSD world this stupid ??? if so.. what chance do we have to be taken seriously. I know its RSD and we all know that a negative bone scan doesnt mean anything, just that the blood flow was working at the time. hello I burn more often now then freeze meaning the blood flow is moving... I now fear how comp will use this information. and what this means for my treatment now... I hope the johns hopkins consutation will lay all doubts to rest. sorry just venting ..any one having similar issues please tell me how it worked out for you