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Old 05-10-2013, 05:27 PM
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tkrik tkrik is offline
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Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
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Since you are not working and don't have an income, I strongly suggest you get on some sort of state aid program (Medicaid). You will certainly qualify and that will help pay for your next MRI as well as follow up visits and any other testing that may need to be done. It will also help reduce your stress level some as you won't have to worry about the financial side of having a chronic illness.

Waiting for a dx is tough. I was lucky in that it took 3 years for me to get diagnosed. Others it takes years for a dx of MS or any other disease. Sometimes the answers are not quick and waiting is what has to be done. Unfortunately, this is real life and not a medical drama TV show where answers are given right away. I know of a man who was terribly disabled from some neurological disease. He spent most of his adult life with the disease and passed away at 65 never knowing what the disease was. He went to so many drs and specialists throughout the country and no one could figure it out. This does happen. The key is to find treatment for the symptoms while waiting for a dx.

Talk to you PCP about switching to another AD since the topamax doesn't seem to be working for you. I tried 2 other ADs to help with pain management and finally found one that works the best for me. Additionally, there are other meds you can take for the spasticity. I tried baclofen and Valium with no success, they were too strong for me. Ativan was the right med for me and has worked well. It's a trial and error with medications and what works for one may not work for another. For this, you have to work with your PCP on coming up with the right combination of medications that will work for you.

I'm not a dr. and I don't know your medical history. And trust me, even if I was a dr. I would never in a million years dx someone over the internet and I would hope you wouldn't want a dr to dx you over the internet. With that said, I can only give suggestions based on my experiences and what I have learned in my MS journey.
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"Thanks for this!" says:
KittyLady (05-10-2013), SallyC (05-10-2013)