Your father's symptoms are significant, I believe many a neurologist would make a CMT diagnosis based on what you have said. Bilateral carpal tunnel is fairly rare, most people get repetitive motion injuries based on using one hand more than the other. It happen, but it is also likely to be a sign of a different problem, add hammertoes from early middle age and you have a trail to follow. You often have to do your own detective work. How are your toes? I am 51 and while I began losing the ability to move them several years ago, they have only recently become more deformed. I do have muscle wastage in both hands and feet. Very skinny ankles too.

It sounds like you have researched CMT. Do you feel like it fits? I am moderately disabled except on level ground, where I am strong, and very liable to muscle pulls when dressing, showering, etc. but I am accepting of it and the inevitable progression. I was clumsy as a child, always had high arches, walked on the sides of my feet. Started developing numbness in my toes in my early 30's, pain in my legs and arms in my 40's, numbness is now above my knees. EMG /NCS shows large fiber neuropathy with muscle loss, skin punch biopsy shows severe smal fiber neuropathy.

I understand being worried about your children, I have three biological adult children, my eldest son definitely has it, at 27 he needs ankle bracing, falls a lot, and is beginning to lose his piano skills, which were considerable. The other two, 29 and 26, do not appear to have symptoms, but my daughter has a baby and is expecting another.