Welcome to Neuro Talk. You will find alot of folks who have compassion. It does sound like you are having a great deal of trouble. Being on Neuro Talk may help provide some hope, and maybe some answers. When a DX doesn't happen it makes living with these conditions really ruff. It is also possible to post near where you live, and someone here may know of a physician who will listen and try again to find out what is wrong. Have you considered Mayo clinic, or a teaching facility? I went to Mayo for my DX, and that got the ball rolling toward the answers I needed. I wish you all the best. Never worry about the long posts. Neruo Talk is here to help. Glad you found us. I wish you all the best. ginnie