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Old 05-10-2013, 09:22 PM
heb1212 heb1212 is offline
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Join Date: Apr 2012
Location: Upstate New York
Posts: 107
10 yr Member
heb1212 heb1212 is offline
Member
 
Join Date: Apr 2012
Location: Upstate New York
Posts: 107
10 yr Member
Default Re: Prognosis

Hi... Truth be told, I don't ask because I really don't think they know. Maybe I just don't want to hear. My small fiber biopsy results showed me at the very edge of abnormal but with axonal swellings. I've read on this site that others who have had far more significant nerve fiber loss have recovered, but only after significant time. Not too many with it body wide, though, so that puts us in a different category, I think. The unknown is so scarey, right? I guess the idea of having this forever is so unfathonable that I sorta chose to believe it will get better... I have to. Knowing that, in any event, I'm in it for at least the long haul, doesn't have me looking for change tomorrow. Are you taking any medication to at least take the edge off? How do you sleep at night? A stranger, yet I so feel for you.
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Originally Posted by Spectrum View Post
I have all of those symptoms too. For me, heat is worse than cold. Direct sunlight from sitting outside or even driving aggravates the symptoms. It's absolutely crazy and unreal. So what do your doctors say now about your prognosis?
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