Oh, and, the cold is a terrible trigger for me. I wear wool socks and slippers everyday, cannot even have my feet and ankles in the cold air, even inside at room temp. Air conditioning vents are horrible. I am actually much better in the heat. Do either of you get toe and finger discoloration? My toes periodically turn bright red, like a fiery stripe across top of foot. Sometimes more of foot too. And finger tips go from white, to deep purple. Lastly, no prognosis from my docs, just say they don't know since they don't know the underlying cause, but have led me to think it won't go away.