Quote:
Originally Posted by Fortunatos
Hello Lisa, Plasmapheresis can be very tiring, indeed. It's quite an assault on our poor bodies. Make certain you eat well. Directly after treatment, many find a bottle of liquid meal replacement works wonders. I certainly do.
MG is a whole bunch of "hurry up and wait..."
As to your Imuran, I "graduated" from this medication in November, having been on it since the fall of 1999. Your blood will be
tested regularly for the first few months. Please don't be afraid of side effects
because for most, they disappear. Do give it a chance, though. You sound like a strong lady to me!
Nice to meet you,  |
Hi, you graduated from imuran? Did they put you on cellcept or something else? And wow 1999. That's a long time. Did imuran help you being on it so long it must of. I'm praying that I can continue to swallow and eat because for a year I could not eat food at all good without mestinon and even then it was hard. Plasmapheresis has been a miracle. If I had to ge more someday I would gladly get that catheter in again and get more. Despite the risk. How long does plasmapheresis last? Its my first 10. And its new to me so curious. It was vary nice meeting you. Hope you continue to bless the group.
Lisa