I am on 60 mg x 3 and 180 mg at night of mestinon. It used to be 90 mg during the day, but they decreased it when I went on 40 mg of pregnisone.

They fiddled with my dose for 5 month until i got to this dose. I found more frequent doses (every 4 hrs) made me feel better than the higher dose of 90mg.

I start IVIG in a couple weeks and I am going to ask to go on cellcept as they wean me off the pregnisone. The pregnisone has made the MG more stable and I am grateful for that. I am also less fatigued but not stronger. I no longer sleep 15 hours a day.


kathie