Welcome to Neuro Talk. You are in the right forum, and you can post really anyplace you want. I am so sorry you are experiencing RSD, coupled with doctors who are NOT responding to you in any meaningfull way. That is not a good experience I know. You have to keep searching for that physician who isn't going to shoo you out the door. Sometimes doctors really don't know how to treat this. It hurts!!!!! If you post near where you live, there should be others on this site, who may have the name of a neurologist in your area that not only knows about RSD, but someone who may have a bit of compassion. If you can find that, You will have a better direction and the help you need to deal with this. I see a physiatrist, I have PN or RSD in left foot and ankle, calf. No spread so far. A physiatrist treats for pain first, and then try to help the whole body on a cellular level. Keep posting and asking all the quesiton you want. Folks will respond to you and try to help. Lots of compassion on this site, as many have experienced some severe pain from their conditions.
I hope you will continue to seek the care you need, and find that doctor who is going to listen to you, and treat you as a human being. I have had the other kind of doc. too, so I know how angry you can get when noone listens. Feel at home here, there is support, and maybe some ideas to help you. Has no doctor offerered you any ideas or treatments at all? I will be here to listen anytime . ginnie